Mother's Day

Happy Mother's Day to the wonderful moms in my life.

Thank you for your love, caring, prayers, laughter, and support over the years and especially over the past month. You show me again and again what it is to be a mom through the fun times and the tough ones.

Thank you to the mom who made me a mom with a sacrifice like no other.

I think of you often. I wish you blessings and happiness. I love our son more than I ever could have imagined.

Thank you to the three hooligans who drain my energy and fill my heart.

Even on our hardest days, being your mother is the best thing that has ever happened to me.

Break on through to the Other Side......

Well, that was one hell of a month that has the gift that keeps on giving, but HOPEFULLY, we are on the easier side of the mountain now. Hopefully. Knock on wood, right?

Owen's surgery was last Thursday morning.

He was amazing and heartbreaking and beautiful and sad and scared and brave and all of the above.

I was nervous and anxious and nervous and anxious and nervous and anxious and I think you get the point.

He's extremely sensitive about his "button" and does not like showing it to people which breaks my heart because it is nothing to be ashamed of, but I'm going to respect that and not post pictures of what his abdomen went through on here right now. One day when he's more comfortable, I may share, but in the meantime we'll keep that for his eyes only even though I know it helped me to see pics beforehand of other children. My apologies to anybody who found this blog because they are wanting information on g-tube feeding, I will say this. You can do it. If I can figure out how to work a gastronomy tube, anybody can. Believe me. The recovery for your child will be painful but it goes by fast. And I hope hope hope this will be a blessing for our family! (And you can always message me privately with any questions. I'm learning people in our situations have to be a team - otherwise this can be a very lonely place to be. So I'll help you if I can, and hopefully you can help me too.)

There was lots of pain and sleeping on day one.

But by day two his color was looking better already!

And we were up, moving around some, and smiling!

We even took a trip to the amazing play room at UNC Hospital:

He enjoyed being reunited with all his family, but his face literally lit up when Popeye walked in the room!

And now we're home. And we're adjusting to all things tube feeding. And we're getting back into our routine.

And our little superhero is feeling better.
Much much better!

Isaac's Basket Ball Camp

This is not Rachel... This is Todd, her husband.

I just wanted to post some pics of Isaac at his first Basketball Camp. He loves sports and basketball seems just right for him. This is an i9 sports camp in Wake Forest NC at the Factory. He realized before hand that he couldn't heave the ball to the 10' basket yet so he decided to focus on defense.

Isaac boxing out in his yellow shorts. The ref didn't see the elbow :)

Isaac listening to his coach Brian Demarco Williams. (Yes, his coach is a beast!)

Here's a video of his first "scrimmage." He got a tie ball and almost came out with it before the whistle.


Here's a photo of his "homework" too.

Thanks for letting me highjack Rachel's blog for a moment to brag on my boy. We love you Isaac.

In other news.....

Some pics to reminisce:

 

 

A Letter to my Son

Dear Owen,

Where do I even start with this one? My mind is reeling right now. My body craves rest, but my mind won't shut up long enough to let it. Something tells me you probably know what that feels like. Owen, I don't know how old you'll be when you read this letter. But I hope when that day comes, you read it and look at how far you've come. I hope the things I write about are just a vague memory in your head. I hope you're not ashamed that I put this out there in this tiny corner of the internet. I hope that you understand why I need to write it. For you. For me. And maybe for somebody else who is looking for hope or a kindred spirit or just searching for someone who has traveled the road we've traveled.  And Owen, I wish we didn't have to travel this road. I'm not going to lie, Owen, this road is a bitch. And I know that's not a nice word but it just is.

Owen, one week ago you sat in a room full of specialists and went through hours of testing and evaluations. And you were a freaking rockstar, Owen. Seriously. We were so proud of how you handled all of it. At the end of it, Owen, they told us you have something called autism. Autism, Owen. And your daddy and I are so sad about that. We're not sad because we're ashamed. Quite the opposite, Owen. We are so damn proud of you. We're sad because now we have to add autism to an already long list of things you struggle with. We think it's too much for your little body, Owen. It's just too much. Then while still trying to process that, yesterday Owen, we found out that you're still not growing and your doctors would like you to have a surgical procedure to place a feeding tube in your stomach, Owen. Did I mention that this is too much? I don't even know what to say other than that, Owen. 

It's just too much.

I wish life were a relay race, Owen. I wish you could sprint down the final 100 meters and pass me the baton. I would carry that damn baton for the rest of my life and let you rest on the sidelines, Owen. I am so so tired of watching you struggle. Oh man. I'm so tired of it.

But Owen, my sweet Owen, as hard as all of this is, as much as I want to scream and cry and throw things at the injustice of it all, I know you're going to prove us wrong yet again. I know this isn't going to be too much for your little body to handle because you have a big God that has never failed to carry you through the hard times. He carries me as well.

Owen, I opened my bible this morning and, through the tears,  I found 2 Corinthians. I love 2 Corinthians. Do you know what it says Owen? It says that "We are hard pressed on every side but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed. We always carry around in our body the death of Jesus, so that the the life of Jesus may also be revealed in our body." Oh man Owen. I see Jesus in your body. I see Jesus in your spirit. Your laughter and smile light up my world. Literally. I don't know why you have to struggle, but I know you will be a light through your struggles. You already are sweet boy.

Owen it also says "For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." Oh man, sweetie. I really can't wait to see you run through those gates complete and whole, physically and neurologically. I can't wait for your body to feel no pain. Can you imagine Owen? NO pain. No screaming because your stomach hurts or your clothes feel weird or the world is too loud and crazy for you. One day we are going to have such a party to celebrate you, Owen!

And Owen, about this autism thing? We're gonna figure it out together. I don't know a whole lot about it yet, but I do know that we have a great IEP team and we're gonna rock it. Kiddo, I'm going to learn everything I can learn to help you fight the best fight you can fight. We're bringing our A game. And Owen, autism is just a label. In spite of what others may think, it does not define who you are. It doesn't capture you. People may not understand it all, but you do nothing less than amaze me over and over and over and over and over and over and over again. And I see you, Owen, not a label. I really do. I just want you to always know that. We've got your back! This whole family, extended and all, we've so got your back!

So I guess what I want to say, Owen, is hang in there. Let's hang in there together. Let's take the tough days one at a time and try our hardest to rely on our God to get us through them. Owen, I'm going to try so hard to focus on your smile and your laughter and your funny little personality. Because you are a joy. You really are. Owen, I'm going to try really hard to focus on the miracle of modern medicine and what those extra proteins and fats and calories are going to mean for your little body. What it's going to mean for your growth and development. I'm going to try not to be scared about surgery and taking care of tube feeding and the logistics of it all. I'm going to try to focus on the positives, Owen.

And when we are sad, Owen, because it's inevitable to be sad sometimes, I'm going to try to remember that God holds your body and your spirit in His hand. I'm going to nuggle you and cry with you and try to remember that, ultimately, this is all "light and temporary."

Owen, this world is full of so many different people. And our lives can change in an instant. And you've changed my life for the better, Owen. Always for the better. Never forget that, Owen. Never ever.

I love you!

Love,

Your mom, your fighter, your friend.

Spring Breakin' It Mountain Style

We spring breaked it in Sparta, NC this year.

Tiny mountain town with little to do.

It was pretty wild.

The Holland's joined us for a few days. 

The first night we were snowed in with sangria.

That is not a bad situation.

I laughed. A LOT.

Nough said.

The next night was our big night out on the town. 

(Which always means burgers and bowling....)

I think it's safe to say the kids had fun.

Group Hug anyone?

And this is how we roll bowl.

lol.

And now we're back into the swing of spring and counting down the days until summer.

This Is What Happens When.......

 1. This is what Todd and I look like when we have to talk to about 80 teenagers about sex.
I'm not sure I looked up once.

2. This is what the kids look like after they've been playing in the creek when we've been quarantined to the house with pink eye. I had to do a LOT of googling, but I finally "found" created a site that said letting your child play in freezing cold, disgusting creek water helps him get over pink eye and fevers. It's doctor recommended.....

3. This is what happens when Erika and I need to do some grocery shopping and everybody has to pile in one car on the way home from Moes.

PS - Owen couldn't turn around so we told him to raise his hand. Still cracks me up.

4. This is what happens when Nana brings her camera to town and Lucy is actually behaving herself.

5. This is what happens on Easter Sunday before my camera dies.

6. This is what happens when Sean and Todd call each other to find out what to wear for Easter.

Just Kidding. It was coincidental. I think.

7. This is what happens after my camera dies on Easter Sunday and we try to get a group shot with my phone but I don't know how to work the timer and so the group shot sucks and Todd can't help us because he's still at church working in a shirt that looks just like Sean's.

8. And this is what happens when we compromise and just agree to take a bunch of individual shots with our poor, stupid mother who can't work her iphone camera and who also lets her good camera battery die on Easter Sunday. Technically though, if you think about it, it's kind of a religious analogy because the battery did take three hours to recharge and then the camera was fully resurrected..... but by then everyone was changed and I was napping. Priorities, ya know?

9. This is what happens when you insert an image of your own that includes me being zapped by lightning for comparing my camera battery to Jesus.













10. For reals though - Happy Belated Easter! I love me some Easter and even though I did not actually give out live bunnies to everyone in the kids classes, we did have fun celebrating the greatest gift of all time and I hope you did too!

The End.