Thursday, June 23, 2011

Choosing the Good

Tonight we're choosing to look at the good.
And believe me; it is definitely a choice.
And it's proof that your prayers are working. 
Because this road ain't easy, but I felt God's peace today.
I woke up and put on my "we totally got this" attitude and rocked it out all day.
I asked questions. I got answers and took them in stride.
I made phone calls. I filled out gobs of paperwork.
I talked to doctors here and in Raleigh. 
I'm prepared for some rough appointments and tests tomorrow and Monday with immunology and genetics.

And you know what? 
Owen rocked it out today too. 
Seriously. He was such a superstar. 

He wore his new shirt and took the saying (insert snack) to heart.
He's added a few new foods, he's starting to use his tongue a little bit better, and he only had one rough meal today. 
Just one. Out of five. 
He also only teared up a few times during physical therapy.
Yup - he definitely deserves the rock star title tonight.

And tomorrow is Friday.

And next week we get to see these people:

And their laughter and giggles and sojourn back into being a family of five for a week is just what we need.

And they'll be excited to see Owen doing some of this:

(smiling during a meal)

and some of this:

cleaning his mouth using his tongue and lips.

(instead of screaming and trying to scrape the food out with his hands.)

And I'll get to see him. (The tall one.)

And I don't want to make anyone vomit, 
but I really do miss him. A lot.

Yesterday while I was running, I had this really deep thought/analogy. I think we all know deep thoughts are pretty rare for me, so I decided to share it.

At the clinic there are one way mirrors that look into the therapy rooms.
I drop Owen off at 9:00 and just a few minutes later I'm standing on the other side of the window watching him, but he has no idea I'm there. When he's in OT, the only thing that separates us is a door. And a lot of times he's screaming my name over and over, waiting for me to come in and rescue him. And even though it's painful, I know he needs to go through this for his own good. And all he has to do is walk through that door and I would scoop him up in a heartbeat and kiss him and wipe his tears away. And I thought about how life is like that sometimes. We're screaming for God to answer our prayers in the way we see fit; we're screaming for Him to rescue us and when He doesn't, we feel alone. But really He's standing right there waiting for us to run through the door and let Him comfort us and give us peace through the storm. Because sometimes we have to go through the storm in this world. But we don't have to go through it alone.


  1. Wow. Thanks. Thanks for your openness and allowing your life (and Owen's) to be a testimony to God's greatness despite hardship. Yay for Friday! Way to go Owen (and Mom!)!

  2. Rachel, I think YOU are a ROCK STAR, too. I'm glad you get to see EG, I and T soon. I am sure none of us vomited at how much you miss your man. (I didn't even gag).

    I am praying for all of you and I hope that something happens today that makes you laugh so hard you (almost) pee your pants.

    Week 2 is nearly done! Love you.

  3. You are getting closer to the end every day. I hope the answers are helping you feel better. I am glad you get to see your family!!!

  4. What a powerful day you both had in your thoughts, actions, and witnessing to how God is speaking through the storm(s) of this all! I am incredibly blessed to share so many blessings through our lives!

    Continuing to lift you up in prayer as you approach the time for all 5 of you to be together! I know it will help so much! Anxious to hear about today's journey and knowing Monday will be another long day too. Wishing we could shorten them up for you both! Praying!! Luv U

  5. I thought of this when I read your post and thought perhaps it could give you a few needed laughs:

    I am glad to hear that O-Dawg is making some progress. It is amazing to me that they can re-train someone in the use of their tongue. Sounds so hard for all involved.

  6. Thank you for sharing your analogy. I love you Rachel!!!