Today was long.
Owen's definitely onto us.
He started screaming when we got in the parking lot, and when they carried him away from me this morning while he screamed my name, it broke my heart. (And yes, Cinda. I cried.)
But I know this is what he needs.
And he's a trooper.
He is working so so hard!
Today they started occupational and physical therapy to work on various issues he has with muscle tone and abdominal weakness. I watched from the outside and it looked awful - like a super hard workout class that he didn't choose to go to.
Be he did it anyways with very little crying, which is more than I can say for myself during a hot yoga class.
He was so wiped out at the end of the day, but he cheered up on the way back to the hotel, so we did some swimming with Nana who is visiting for the week.
Thanks everyone for the sweet comments and emails.
You have no idea how much it means!
This is hard, but I am feeling confident and hopeful for the first time in a long time.
And that feels good.